24-year-old woman learned her illness was a “woman’s problem” for 11 years before she was diagnosed
From the age of 13, Emmie knew something was wrong.
Her period was painful and she was often doubled over in pain, vomiting.
But periods are supposed to be painful, she was told, and her agony was dismissed as “woman’s problems.”
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The debilitating pain only got worse over the years and despite seeing hundreds of doctors and professionals, it took her another 11 years before she was diagnosed with endometriosis.
“At first it only affected me during my menstrual cycle, but now it’s everyday.
“It’s so bad I have to use a cane.
“It impacts every aspect of your life, even unnecessary things that you would never have considered before, like walking into the corner store is incredibly difficult now.
“I’m really trying to build my portfolio to become a tattoo artist, but this condition has put a major obstacle in pursuing a career also because I’m not fit to work.
“I have to claim benefits, which I never thought I would ever have to do and it takes away your independence considerably.”
Symptoms Emmie is experiencing include a heavy period, migraines, pelvic pain, fatigue, and painful sex, which she says is not talked about enough.
“Sex can be so painful that I’ve actually been hospitalized before, which is incredibly embarrassing, but as a young woman it’s sad to have to miss this part of my life.
“We never talk about it, it is almost taboo and therefore it is never treated and never treated.”
Endometriosis is a condition characterized by the growth of tissue similar to the lining of the uterus outside the uterus.
The cells behave the same way they would inside the uterus, swelling and bleeding, but cannot be flushed out like they would during a normal period, resulting in horrible pain.
If left untreated, endometriosis can attach to organs in the body and eventually cause them to shut down, leading to organ failure.
It is said that one in ten women suffers from this disease and that there is currently no cure.
The average diagnosis time is seven and a half years, and the only way to get a definitive diagnosis is through laparoscopic surgery.
The same surgery is used to remove endometriosis that may have attached to any organ.
The wait times for a laparoscopy are over a year and there is no guarantee that the surgery will prevent the regrowth of endometriosis.
” I must collect funds to have my surgery in private because I have deep rooted endometriosis in my pelvis and intestine.
“I had the operation in 2019 and had six months of relief and the pain started again.”
The pain can be so intense that Emmie has found herself in A&E on several occasions.
“One evening I had to send an Uber to A&E because the ambulance wait was so long.
“The Uber driver basically took me to the hospital and I was on the floor crying and screaming.
“The doctor told me that if I didn’t calm down, he would call the psychiatric team on me.
“Hearing that as a young woman when you are in so much physical pain, it wasn’t just anger, it just felt like I was not believed. “
Emmie speaks passionately, as she puts it, of the “systematic disdain for women’s health.”
“I believe there is a systematic disregard for predominantly female health care and what I classify as people born with injuries. So whether you’re transgender or gender non-conforming, there has to be that inclusion as well. I think most of the time it gets bypassed as just being a woman’s problem.
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“I think if it was a male disease, I think there would be a cure for it now.
“Think about the amount of funding going into something like erectile dysfunction, and that doesn’t mean it’s a problem, but when you compare it to something that affects someone’s ability to live like a normal person. , it’s minimal. “
Emmie is raising money for her operation that you can donate to here .
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